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What to expect from my neurologist
Honestly, the neurologist really isn’t going to be all that helpful. They'll likely tell you what kind of dementia it is (though with Alzheimer's, they cannot be sure until after a postmortem). They can give you some idea as to the current stage, but you spend more time with him, you'll know better. They will more than likely prescribe medication, which may or may not help. You can ask for copies of the brain scan. They gave me a DVD right after my dad's MRI. I have it, looked at it once. I have no idea what I was seeing, but from what the neurologist told me, it wasn't abnormal.
Ask them they score of the MMSE oral test they did. My dad was about a 18 when he was diagnosed, a 12 the next year, and he was a 2 when I moved him into memory care about six months after that.
I would also ask for a referral to a geriatric psychiatrist. As my dad declined, so did his pleasant personality. A geriatric psychiatrist is going to be better able to assess what medications are helpful for aggression and depression. You may not need this doctor now, but it would be good to have this person in your contact list.
The neurologist is not going to assist you with getting help, nor will they prognosticate. They may have a social worker on staff in the office, and that person will be able to help you find local assistance, like support groups and companies that provide home aides.
The one thing the neurologist will provide you with, when the time comes (which is going to be up to you, they are not likely going to offer it), is a letter stating your husband is no longer able to conduct his own affairs. Hopefully you have power of attorney all set, and this letter will allow that person to assume that role.
I agree with what pigeon said. The neurologist was a big slap in the face for me, on how little help they actually provide.
Ours just referred us on; he did have those trained social workers on staff, who gave us brochures about support organizations and home health care. And we got copies of the scans, which a nurse explained and even I could see huge diff in DH brain and normal brain.
But as for what stage? You will make that judgement. There’s so much that nobody knows, what they’ll tell you is every brain is different, so different people will show different problems at different times.
You’ll learn more practical help in this forum than we got from any of the docs.
The Wikipedia page has a good explanation of the MMSE: