Loading discussion content. Please wait...
How does this help anyone?
Hello neetzie and a warm welcome to you. I am sorry for the upset at the thoughtless input from others; most people do not mean to be hurtful but are not at all clued in to dementia information and dynamics and often also are not cognizant of how their words can hurt.
What I learned to do after encountering this was to not give out any details or information. If asked, I would say; "Nothing has changed; everything is the same." Then I would abruptly change the subject. If the person persisted for details, I would simply say something along the lines of, "We are hanging in there doing the best we can;" if a non-family member, occasinally I had to add, "I prefer not discussing personal details; but thank you for your concern."
There were problematic family members, I soon learned to not contact them with any information; if they asked, same answer; "Nothing has changed, everything is the same," and change of subject.
The less detailed input in some circumstances seemed to work best.