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After a certain point, PWDs need to live in a bubble. They (and me) cannot tolerate much change in their daily routine.
We live in a different world and outsiders just don't understand. I have stopped explaining, I just do what I want.
Just a suggestion: perhaps in the future you can get your respite folks to do outside chores and errands while you keep the home fires burning so to speak.
Hi RanchersWife, my brother used to come from out of state maybe twice a year to visit with our Mom. By this time my two sisters and I were live in full time caregivers for our Mom. Our brother would come in for a week visit and begin to give views on how to care for our Mom. We knew he meant well but the tension he caused did not help to give us respite in caring for Mom.
We endured his suggestions, his attempts to change some of the day to day routines we had established. While he did this in love of my Mom, I don't think it occurred to him that maybe this was to much of a disruption for all of us.
My Mom's circle of who she felt safe with was shrinking and some family members who visited rarely could not always understand this. It was as if the time for them to be involved in our Mom's life had passed and we were now living in a new normal which might not include some family members.
Hope this helps-