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Update on neurologic appointment
Iris L.
Posted: Monday, July 18, 2022 6:57 PM
Joined: 12/15/2011
Posts: 18056

I had an appointment with the neurology nurse practioner, whom I had apparently visited about four months ago in March.  Of course, she asked how I was doing.  My major symptom, memory loss, I felt too awkward to tell her about.  And that was that I did not remember her at all!  She is a young Asian woman, and I would swear that I never saw her before in my life!  But I did not want to tell her that I did not recognize her.  I felt embarrassed.  


Mostly we talked about my sleep.  She increased my sleep medication.  She scheduled a computer based cognitive test for September, after I consult the sleep specialist and the pulmonologist.  We talked about apathy, but she has no treatment for that.  That's all.



Posted: Tuesday, July 19, 2022 5:07 PM
Joined: 3/7/2012
Posts: 2738

You know Iris, I don't think there is a thing wrong with your appointment. Frankly they sound like DH's. He doesn't recall when we were last at that office - I usually have to look back on my phone's calendar! 

The difference is DH has no issue saying "well, you know, sometimes I'm forgetting things but its ok." Then he usually follows it up with "I don't think its worse, sure isn't better, but I know that." Then he's asked several chit chat questions just for regular conversation.

Sleep is very important, I'm glad your addressing those issues. Do you have a CPAP? That has been great at getting DH to sleep through the night and getting into REM sleep.

I'm sorry you were embarrassed to mention the memory loss. I totally understand it though. We all deal with different levels of comfort in what we are comfortable in revealing. Keeping you brain engaged daily is vital - and you know that.


Michael Ellenbogen
Posted: Wednesday, July 20, 2022 9:15 AM
Joined: 11/30/2011
Posts: 4323

 I am so sorry you had to feel embarrassed. But keep in mind there is no reason to need to feel that way as none of this is your fault and the more the doctor knows the more, they can help. I know you already know that. Don’t ever beat yourself up over this as it will only get worse over time. Have great day.

Iris L.
Posted: Wednesday, July 20, 2022 4:37 PM
Joined: 12/15/2011
Posts: 18056

Michael, please do not think that I am thinking badly about myself.  In fact, I was proactively protecting myself from a bad outcome.  From my own experiences and from reading many caregiver posts, I have learned that people tend to become highly offended if they are not recognized by PWDs!  Then they say bad things about the PWD.  I know she is a professional and should not take non-recognition personally, but I was not willing to take that chance, because I needed her unbiased medical advice and for her to write my prescription.  I realize this is not at all the optimal way to handle a medical appointment, but this is how I have learned to protect myself and to get my medical needs met.   



Eaglemom, I do use CPAP at night and it has been a help.



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