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I Have Alzheimer’s or Another Dementia
New DSM guidelines coming out next year.
Sophisticated reading, but interesting for some.
But I can't click on it.
Lisa, Unless it's in blue, you can't. Iris knows how and puts it that way. I don't know how. So cut and paste.
this is a shortcut I created to the same place. If you highlight any link and then push Ctrl key in lower left of keyboard and the c letter key it will copy the link and then go to another tab in your browser and click in the address bar, remove anything there and press Ctrl (control) key and the V key it will paste that in the address bar so you can go to that site. I hope that is clear enough for you to follow. Sorry. I couldn't figure out any option to do anything different on posting a link.
ALSO, in case you don't know how to highlight what you want to copy hold down the left mouse button and use the cursor to turn the area blue or highlighted.
Hi Iris, Glad you found it. I posted it somewhere with a few comments.
I know Jim. He's from near-by in NE PA, very active in the Alz. community.
I don't like that they are phasing out the term dementia, because of its bad connotations, but are leaving in Alzheimer's.I can still recall waiting for the verdict after all my failures during testing. I was prepared for the word dementia, but the AD tag didn't sit well!The best part is no more dxs after a 5 minute mini-mental. You must have a complete diagnostic work up before given a diagnosis. Do you remember if blood tests and brain scans were part of the requirement? I don't.
I do not see any imaging studies required for diagnosis.
This will be a big blow to the "early diagnosis" crowd - the additional cognitive testing will add more appointments and more cost to the patient and insurer, making it very likely that people resistant to such a diagnosis will not complete the testing, and will only be seen later in the disease when circumstances force them to be seen.
So again, we will have lots of people diagnosed in mid to late stage.
Day to night:
The complete diagnostic bundle must be done. I've known too many local people diagnosed with AD after a 5 min. mini mental. A simple blood test might have shown a Vitamin deficiency, or a brain scan shown encephalitis.
I was over 65 and so medicare plus my supplementary insurance paid all. I didn't pay a penny.
I'm going to have to read Jim's article again. Of course, as I wrote on another thread, getting rid of the word dementia because it frightens people and leaving Alzheimer's ??????
I was stating that there is nothing in the new guidelines that requires any imaging to be done.
Not everyone can afford a Medicare supplement, what do those people do? Agree to pay 20% of all this testing?
In an ideal world, everyone would follow up with their doctors and get every test done. In reality, people who fear having the disease will merely ignore all recommendations and only in a crisis will they present again to a doctor.
And if we get into a discussion of the difference money makes in the medical care one is able to get, we are getting into politics.
One side believes that all deserve good medical care. Others believe that if you weren't industrious enough to make the money required for such, it's your fault and tough.
I believe that all should be eligible for state of the art diagnosis and treatment. If one wants a private room, pay extra.
I wasn't bringing politics into it at all.
The bottom line is the process of diagnosis remains confusing and is based on all physicians understanding what constitutes minor and major neurocognitive disorder. They don't even understand what dementia is yet.
It also remains that those people who probably need to be diagnosed the most (who are having difficulty functioning day-to-day) are resistant to seeing a doctor anyway and certainly will not go for repeated appointments for testing.
Day2 nite. My apology. I didn't mean to imply that you brought politics into the discussion. I did.
By the time a person is resistant to seeing a doctor, nothing is wrong, they are probably past Early Stage. Conventional thought seems to say that's the point where the most can be down to elongate that downward slope.
Personally, I like getting rid of mild cognitive impairment designation. However, the new will also be confusing, hopefully just at first.
The thing I don't like about MCI is every physician seems to have their own definition of what it is. The most common seems to say if you can live by yourself you just have MCI and most of them seems to add: while it's MCI no meds are necessary. We'll wait until you're worse. How about rethinking that: what can we do now, to prolong this phase?
And we need to find out why some MCI patients never progress to full blown AD and others do. Can we distinguish between the two groups by the use of some of the biomarkers we now have?