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I Have Alzheimer’s or Another Dementia
Alzheimer' victims benefitted by social groups
Please don't refer to those of us who have AD as VICTIMS. We are not defined by AD, we haven't lost ourselves, we are people who have a probable diagnosis of AD and are carrying on our lives in a fairly normal way, maybe even better than we were before we were labeled with accelerated brain aging.
Alzheimer's is a condition. Like diabetes or heart disease.
Some time lurker, first time poster here. If you live in the midwestern U.S., there is a group called "Without Warning" that has saved my sanity since my diagnosis six months ago. It is for "people living with EOD" and their care partners. The monthly meetings are held in the western suburbs of Chicago, but members come from as far away as Wisconsin, Indiana, and Michigan to attend!
They have applied for a grant to take it nation-wide, so keep your fingers crossed!
Welcome, Juliette. You're fortunate to have such a group. I'll keep my eyes open for it, although I don't live in the midwest. Here is a link to the website about the program:
http://www.rush.edu/rumc/page-1160429787936.htmlThe point of this article is that the patients and family members themselves got together and formed their own support group, after the formal support group was disbanded. Patients and family members don't have to wait on an organization to start a support group.How are you doing, Juliette? Are you on medication? Please stay in touch.
Welcome to our group.
How far west of Chicago is the group. I raised my family in Oak Park. Wonderful place to live.