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Caregivers Who Have Lost Someone
Thank you Quits for posting this for us. It is beautiful and so true.
Our lo's will remain in our hearts forever. Let me also take the
opportunity to thank you for all you do on the forums. You are truly
an inspiration. HappyBee
Thank you HappyBee! I have been blessed by these boards for a year now.
I have a little more time than some caregivers do since my husband can still do so much for himself. I am still struggling with giving up my child care jobs and cleaning houses instead. I miss the interaction, but what great training God provided for dealing with FTD and ALZ. I am glad you are helped by my posts, that is part of God's plan, I hope, to be used by Him.
Thank you Millie,
I have enjoyed your posts too!
I just lost my husband this last month. He was diagnosed with alzheimers 10 years ago at age 59. I was his primary caregiver. We just celebrated our 49th anniversary in Nov. He was not a typical alzheimer's patient. He lost his communication skills about 2 years ago. Sometimes he would say a few words sometimes they made sense but most of the time you could not understand what he was saying. He was very active and into everything during the last year. He would put things in his mouth and you could hardly get them out. It was a difficult 2 years but I would give anything to have him back again. I miss him terribly.
He had a couple of seizures one day and was put on anti seizure medication and seemed to be ok. Then I tried to get him up one day and he didn't have any strength and he just seemed like in a daze. Thought maybe it was the medication but took him in to the hospital and a brain scan revealed a brain bleed. We do not know if the brain bleed caused the seizures or the seizures caused the brain bleed. There was no fall or injury. The doctors said he needed a craniotomy. It was a large bleed 4 cent. It had pressed his already shrunken brain to one side. He made it through surgery but just couldn't eat without choking or stand or do anything. We decided after talking with doctors that he had very little chance of coming back to even what he was before. A feeding tube was not an option as we had both filled out papers years before that we did not want them. He lasted from Christmas Eve until Dec. 30th. He was the love of my life and I miss him .
I really like all of them. They are amazing!
ladydeerhunter, I am so sorry! My heart aches with you as I read your words.
You have endured the worst of the disease. You did your best for your husband and now I am praying God gives you comfort and strength to face your next chapter of your life. Praying for happiness to make the pain more bearable and awareness of all things beautiful in your world that you have been too tired and heartbroken to see. In Christ, LaQuita
That is how I feel about my Dad. I am a new member, Just joined yesterday.
LadyDeerhunter, I am so sorry for your incredible loss. This is such a horrible disease in the way that it takes our loved ones from us. Know that you are in my thoughts. You were there for him, loved him all the way to the end. What a blessing for him and for you.
I just lost my Dad on April 30. I was there when he took his last breath. I feel honored to have been there when he crossed over. In some ways, getting on this site and just reading what all of you incredible people are saying has already helped me. I don't feel so alone, which is where I've been since he passed away. I don't know anyone else who is or has gone through all of this. I just joined yesterday. I see that there are other people out there that know what I've been through and what I am feeling in my loss. I am grateful to have found this wonderful forum to share.
I am glad you have found comfort here and it does make such a difference to know you are not alone.
My husband is the one I care for so I am mostly on the Spouse/partner board but I kept seeing pictures that would/do help me when I think of others I have lost and am slowly losing my husband.
Keep reading and posting. Healing comes from sharing your pain with others.
deerenee I am so sorry for your loss! Grief is hard and you were grieving your loss years (probably) before she had her last breath. Thank you for sharing that the pictures help.
I am a visual person so the pictures and poems or quotes speak to me in ways that my husband who has Alz and FTD doesn't understand. I am glad it is helping others, too.
I know not everyone is a believer but I am and this one helps me...believing God has a purpose and will use ALZ/FTD my husband is trying so hard to live through for good.....I may never know who was touched by our lives.
I feel like I am spamming (sorry!)
but I have these photos that I hope to be of some help for people going through this.
my grandmother and I made the best of it
here is the link