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LGBT Community and Allies
where do WE turn for help?
Hi and welcome,
I don't think anyone is every ready for this journey.
My heart goes out to you guys in the changing department, it sucks to be aware as these things happen.
Just wanted to say feel free to join in the spouse and caregiver sections as well (well, feel free to join in anywhere), but those two tend to get the most activity.
Hang in there, glad you found your way here.
I am so sorry that you experienced that. I second getting another agency. I had a really bad agency and case manager the first year and it was heck, then I found a better one and things have been really great.
You will appreciate the help whenever you get it. It is a process for anyone.
Make sure when they are looking for someone for you that they are aware of your needs, you might add someone who isn't homophobic.
When I got my diagnosis, my workers became much worse to me and we had to fire them...so I added to my needs in workers someone who knows how to work with people with dementia. So far that has proven the best thing I could have added.
We ended up going with a company that deals with brain injury.
Hang in there.
Hello sani2218 and though I am very sorry for the reason that brought you here, I want to extend a very warm welcome. My heart goes out to you in regard to your spouse's dementia and the grief that the progression of her declining condition is bringing. Your spouse is blessed to have such a loving and compassionate advocate at her side.
You have already been given good input, and I too agree with the great advice. Sani, you will find that there is SO much support on this Message Board that you will find it a mainstay for advice, helpful hints for care issues, there is a lot of experiential wisdom and more than anything; there is a wealth of personal support beyond counting. We are so glad to make your acquaintance and have you in our midst.
You have found your way to the LGBT specific Forum and that is fine, but I do also want to invite you to post anywhere on the Message Board you wish. Most of our LGBT friends who have been on this journey use the Spouse/Partners Forum for their posts and input. There is a lot more input there and a whole lot of great practical information and support.
I have been on this Message Board for years, and always, without exception, our LGBT Members have alway been welcomed with open arms no matter where they choose to post, and you will find much more input on the other Forums such as Spousal/Partner and Caregiver Forums. So, feel free to do what you wish, you are part of our extended e-family now and you are not alone.
Also, I would like to share with you that the Alzheimer's Assn. also has a Helpline that can be reached at (800) 272-3900. If you call, ask to speak to a Care Consultant. Consultants are highly educated Social Workers who specialize in dementia and all the dynamics that surround that diagnosis. The Consultants can offer their support, help to problem solve, provide information including contact information regarding supportive entities within your community. There is NO fee for this service.
Please do let us know how you are and how things are going. We will be thinking of you and we truly do care.
I only just now saw your post. I hope you'll have time to come back to the forum and read all our messages of support for you.
My Mom had a very loving spouse who cared for her. It sounds like you are just the same for your dear partner.
Just know that you are not alone. Lots of people out here understand what you're going through.
Much love to you!