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I Have Alzheimer’s or Another Dementia
posterior cortical atrophy
Hi, and welcome to you both.
Socializing is one of the best things he can do to preserve function.
I don't know of many with PCA are on this particular board, but there is a very active video support group by and for people with dementia and there are a lot of members with PCA in these groups...they are run through Dementia Alliance International or DAI. As you sign up, mention the PCA and that you'd like to be in touch with others with it as well.
They are very good about sending emails with links to each week's group.
Their site is here: http://www.dementiaallianceinternational.org/membership/
I have loved these weekly groups as well as their Meeting of the Minds webinars wherein they have guest speakers. I have learned so much tips and tricks for living with it, and I have learned that what I have been experiencing is normal...and mostly, I just don't feel so alone with all that I have been going through.
Hope that helps.