Caregiving resources for every stage of the disease.
RSS Feed Print
No suicidal, but don't want to live through final stages, what's the point?
Posted: Wednesday, January 11, 2017 6:37 PM
Joined: 1/8/2017
Posts: 23

Id declined steadily for the last 6 years. I read and hear the caregiver stories and it sounds like a nightmare. 

I don't want diapers, to be fed, to be bed ridden it all sounds horrendous and I don't want to go through it, or drag my family through it.

Anyone like minded?


Posted: Thursday, January 12, 2017 7:38 AM
Joined: 1/8/2017
Posts: 23

Many thanks for your thoughtful reply.

I went right away to the org. You referred and joined.

I am open to every option and every opinion.

THanks again.

Posted: Thursday, January 12, 2017 7:49 AM
Joined: 12/2/2015
Posts: 1015

Marsha, there are probably few of us who don't think of this. I think about it a whole lot. I have an Advanced Directive that might or might not work to give my wife the power to take me home or keep me home with no food or drink unless I ask for it, then bring Hospice in after about a few days or more. She knows the parameters that I've given her to make the decision, but the decision will be hers alone to make as I obviously won't be competent at that time. Me, I want to live as long as I can get some objectively observable enjoyment out of life, which I hope is for a number of years to go yet. I would hate to go to the other side earlier than need be. But that is just me. I went though a phase last year of thinking about it all the time, but then I decided to go and get as much as I can out of life for as long as I can get pleasure out of it, then leave the final chapters up to my wife and son. They know my heart, and I think they have the guts to go with their own hearts.  Good luck.
Posted: Thursday, January 12, 2017 7:51 AM
Joined: 1/8/2017
Posts: 23

Thank you very much for your thoughtful reply.

Im 60 yo.  Going into stage 5.

My son is my caregiver with outside support.

We are all fine for now.  I've always been super independent. 

Never imagined living with my son for support.

I lived in a facility "independent living"

For 9 long months before we could arrange 

For him to take over. It was a great place, the 85 yo residents were 

Very nice to me. The food objectionable. 

I would consider going to a different place if needed.

My son is wonderful caregiver. Read up on the best

Pracists and I know I'm very, very lucky. 

I learned valuable info. In your reply.

THanks again.


Posted: Thursday, January 12, 2017 5:30 PM
Joined: 3/20/2015
Posts: 96

Dear Michael,Good information!

Lisa Ramey

Posted: Thursday, January 26, 2017 5:40 AM
Joined: 5/20/2014
Posts: 4288


You are brave to venture over tothe caregiver boards.I did afew times and ended up regretting it afterwards.I have this new thing w/ writing and not spacing words and haven't been posting much. I just wanted o reach out to you and let you know it is not uncommon to feel the way yourfling.

Posted: Tuesday, January 31, 2017 5:23 PM
Joined: 1/8/2017
Posts: 23

Thank you very much for your kind words.  I needed them right when I read them.

I did not know I ventured to caregiver section.  Most times I'm bumbling along hit n miss.

Posted: Tuesday, January 31, 2017 5:25 PM
Joined: 1/8/2017
Posts: 23

Yes, I'm keeping away from there.  Too hard to think of all of that stuff in my future.

Thank you for your kind words.

× Close Menu