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Joined: 8/17/2015
Posts: 86
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you are all alive and you are all loved. I may not know you, but just know that I care about all of you. There are some cruel people in this world, but there are also very kind people. I will always be here if anyone needs someone to talk to. This journey is tough, and no one should have to go through it alone <3
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Joined: 3/7/2014
Posts: 4
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Thank you for your message! I was searching for info & communication and found your message. I needed to read that. I kind of got into that situation where I don't talk with anyone family or friends anymore. I do lots of projects in this old house. Seems like they are kind of staying away from me also. Or maybe they aren't so interested in talking to my mom when she can't follow or respond to the conversation. So I'm goin' it alone with my Dear Mama. I've been with her quite some time now. Retired early so stay in her home and keep her as happy as I can for as long as I can. Being in her home over 62 years really does help ease her with this illness. She knows & is familiar with the house. She is declining now and at the end of dosages for Exelon Patch & Memantine tabs. It's just the disease declining now. The strange thing that I want to find out is how she talks all over the place after lying down for bed. She talks about many different/strange situations and sometimes asks me a question in it and looks at me. I just go with what ever she's talking about and it's fine. But, it is just so strange? So many different situations and she'll go on and on about one into the next and sometimes the words just don't come to her so she uses her hands to describe & she has little cute bouts of laughter on and off. It's just so strange, but cute. It's not like she's going back in time like I hear so much about. Her current/recent memory is completely gone. Have a doctor appt. in 2 months and will ask what he thinks. I just wondered if anyone every experienced that with their parent of Alz/Dementia (Vascular). So, I'm going off here. I'm sorry. Just venting & your message grabbed me. Thanks for your shoulder. God Bless, Suzy
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Joined: 2/24/2016
Posts: 1096
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Thank you beautiful for the kind words. Glad you are feeling better. I hope that you will continue to heal and know that you are loved also. This is for you:
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Joined: 2/24/2016
Posts: 1096
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sseyocean, I don't think your experience with people is uncommon. I too find others staying away as they are uncomfortable watching someone struggle. I don't think it is malicious. I think it is just awkward for them. I try to make people comfortable and laugh and joke about my inabilities at times. It seems to help, but sometimes you just don't feel like laughing or joking about it. Anyway, we make the best of our situations. What else can you do.
As far as your dear mama, I don't think that is too unusual either, but I hope others will chime in and let you know of their experiences. You will probably get more responses if you post this on the caregiver boards.
I commend you for being there for your mom. May you be blessed with beautiful loving moments on your journey with her.
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Joined: 4/12/2017
Posts: 29
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Thank you
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Joined: 11/29/2011
Posts: 7027
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Mark, Welcome to our world. We're so glad you found us.
Do go to either the I Have AD or Younger Onset and begin a new post by telling us something about yourself.
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Joined: 6/6/2017
Posts: 1
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Thank you and may God bless you oh so much. I am new. I would like to introduce myself: Dr. Elisheba Weathers
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Joined: 11/29/2011
Posts: 7027
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Welcome to our world, Dr. E. We are so glad you found us. From your history is the re the possibility that your dementia is a non-progressive type and may actually improve?
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Joined: 6/18/2017
Posts: 9
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I have very few issues with others...
My big issue is that guy in the mirror... the one who tells me I should suck it up and get back to work.
Externally I haven't felt the heat although I went to a Men's Meeting at church and mentioned my SS disability was approved and there was a stunned silence and it hit me they were thinking "holy spit, he is ill"
To be honest.... at 51 I understand the disbelief, I can't believe it myself sometimes.
J
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Joined: 5/22/2014
Posts: 37
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i assume you still do everything people think because u have this u are done
i am 56 now found out christmas 13 I do stuff with my mens group also
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