Loading discussion content. Please wait...
Younger-Onset AD or Other Dementia
Orthostatic Hypertension & LBD
3. fogginess or impaired mental clarity
4. NOT DIZZY
5. drugs that treat PD can exacerbate...limit to carbadopa-levadopa even though it is the most exerbating...spacing the tablets more important than overall number...the relationship of this med and effect on BP and when to take it is discussed in more detail and is important sitting/standing...What meds are you taking for other stuff?
5. O-H also related to meals
6. diuretic and "viagra" can effect
1. diet/fluid primary treatment!!!!
2. Miralax OK...lubiprostone (Amitzia) by perscription good with L disorders
I did not find anything in the book referencing these conditions hastening death
Bill, I have had orthostatic hypotension as long as I can remember ( that probably doesn't say much!) Never opted for treatment, just was always very careful to always get up very slowly. Has worked for me so far.
PS... I would opt for sudden death. Never was one for long drawn out goodbyes.
I copied your words...went through page one ...guess I missed what you saw.
I did find this;
This discusses the carbadopa-levadopa;
I would look hard at what effect the carba-levo may have on you. Are you taking CR??
added: Ronald Pfeiffer ( wrote the textbook on Parkinson's and was helpful personally) symposium...go in to the thirty minute marker
I found after years of constipation that magnesium MagOx 1 tablet prevents it. I have had blockages a few times so I do the few things that help, including walking a mile or more each day. When I am too fatigued to walk, I take more magnesium.
Seems what causes the symptom is more important than the symptom but then we live in a time when symptoms are treated rather than healing the disease cause.
Bill I am choking when I brush my teeth. Did you have a fix for that regarding sitting down? I choke more on the tooth brushing than general swallowing, have tried no toothpaste which helps a little. Seems my tongue and swallow motions are confused.
With ALZ I find my body prefers everything slowed down or its automatic functions get confused.
This is from PDF;
this looked interesting also;
I believe Marinol is a synthetic. I will do some looking. I was looking for the CBD strain that was best. Iris always said we were pioneers so Westward Ho.
I am including this again. The whole seminar is on the autonomic system. Again, Pfeiffer is the Guru.
CBD oil with THC works the best. Rick Simpson oil (it's on YouTube) is the best. Where I live it is not legal. So I get the CBD oil with little to no THC. I buy it from Charlotte's Web by the Stanley brothers in Colorado. Go to www.cwhemp.com to buy, but before you do, call this # 719-347-5400. They are realm of caring and will answer all your questions regarding product to buy for your illness and dosages needed. They can sometimes give you a discount too as the best oil is about $200. They are a wonderful help. Please give them a call. They are a volunteer run organization so can not always man the phones. Please leave your number and name. They will call you back. They also have a website if you want to read about them first. It is www.theroc.us
The oil is worth every penny! It helped a lot with my anxiety, clarity of mind and even improved my aphasia. It also helps me sleep. When I forget to take it, my husband always notices. So apparently even the CBD oil with little to no THC works pretty darn good. Please do give it a try. Let us know if it helps you.
Back to digestive issues. My hubby has a diagnosis of Alzheimer's and decades long problems with periodic bouts of nausea, vomiting, abdominal pain, bloating, and diarrhea. No one has been able to diagnose it. Any word on whether that might hasten his demise? We're six years in to dementia now, and he's still going strong.
I wrote long post about this in section cbd experiment. Sorry I have been occupied this week with ??? and did not see your question(s) !
The Rick Simpson Oil with high THC was what I tried to CURE my ALZ. It is powerful and most people (non ALZ) get used to it after 5 - 10 days and no longer feel the THC. I could still feel it months later and my cognitive abilities were sliding, and it was not the same as CBD oil without THC.
The CBD I prefer (and it will be an indiviudal preference/experience) just makes me so functional. My mind goes calm, I can do math. Freaky but I remembered my credit card number and security code while ordering stuff on Costco last week. I was going to hunt for the card and the number just came to me. I have NEVER remembered a credit card number in my life. I go for a walk with Betty the dog and find I have been out for 45 minutes, not 5 and still feel ok.
So if you could get the oil I would try CBD (not hemp oil) first, see if it works. The youtube videos on Parkinson's and marijuana should give you a feel for what to expect. I think most of them are watching the shaking and stiffness melt away after using a vaporizer for marijuana. The people inhale it, smoke it and boom they can move. People see it and think it is fake. You tell me. It is about 10 minutes after I take oil I can talk walk and think.
this article claims no evidence for positive effect and that marijuana causes mood disorders and lung cancer. (no evidence for either)
Bill - this video is a guy I think you could relate - a former cop with Parkinson's who speaks for marijuana in blog Ride With Larry
what it looks like inside one dispensary
Bill - I have no idea what might work for you because of the Lewy Bodies.
I think the non THC oil might be better for you as it should not cause any sense of anxiety or weird thoughts.
On the other hand the THC might be calming if from an Indica strain.
this is why we need dispensaries so we can work to find the best method of using and best plant strains for us, at that time.
I would look online for people using CBD for Parkinson's successfully and ask them for help.
sorry it took so long to get back. I am not an expert and I am willing to go to jail if I have to spread the word. We all deserve a chance.
Links to people using CBD / marijuana for Parkinson's:
Somehow I missed this thread earlier, but thanks for posting. Hypotension has become an ongoing, serious problem at our house. And it's not just on rising from a chair, it can be anytime. He has had at least 4 falls due to this. Last week DH's blood pressure after sitting in the doctor's office for 10 minutes measured 64/45. He takes meds to increase his BP, but obviously they are not working. I'm going to try the MMJ route, since that is legal in our state for the treatment of Alzheimer's.
Dementia with Lewy Bodies and Parkinson's Disease Dementia by J Eric Ahlskog
This was my bible.