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current CBD oil use
alz+
Posted: Thursday, April 11, 2019 9:28 AM
Joined: 9/12/2013
Posts: 3376


This is my personal account of treating symptoms of ALZ with cbd oil, I am not suggesting anyone do this and I have only personal experience and that reported by others online as basis for my findings. There is plenty of information online about it, video showing people responding within minutes, this is what people miss. It acts like a fuel and you don't take it for weeks waiting for it to kick in. It happens within minutes, you find yourself doing things you could not before.

*****

Sublingual means let cbd oil absorb before swallowing, place drops under tongue, hold for 1 - 3 minutes, currently using tinctures in bottles with dropper from dispensaries.

Have been forgetting to take it which is a problem I did not foresee.

I moved my medication basket around to make it more obvious.

Daytime: CBD oil is 4:1  cbd to thc

Afternoon: (start to fog out heavily, usually in bed by then) 1:1

cbd to thc

Night time: I am out of dispensary sleep oil so using former version which is heavily THC. 

Anxiety episodes: use small dose of night time oil or puff on Indica

Because we don't have dispensaries nearby I have been gifted edibles from neighbor who is baking for people in chronic pain, insomnia, and anxiety problems. I would think dispensaries in California, Oregon, Washington, Colorado would have super good bakery items. 

Insomnia is  a problem for us and our caregivers. If you want to be asleep all night I think edibles are very reliable and not hard to give someone. My first dispensary edible experience was extreme. I didn't know you don't eat the whole thing and I became frozen and room spinning. fortunately daughter was there and put me to bed. slept about 10 hours straight. 

****

taking CBD oil is not like having a glass of wine and feeling upor high. I do not "feel" anything. I do not feel altered at all. I find myself doing things easily, find myself out of bed, dressed, being able to function without forethought.

Some people expect to Feel Something and when they don't, miss the benefit of what was happening. I believe CBD oil gave me a second chance at life. The physical aspects of Alzheimer's continue to progress but it has slowed down the intensity.

*****

This is NOT Hemp Oil.  

*****

Keeper has diabetes and high blood pressure. He started the oil 2 months ago on daily basis. His speech has returned and he is physically active again. He does not recognize the change in himself but it is astounding. He is thinking clearly and active. He will get his numbers checked soon and that will tell doctor if he needs to back off meds (which have not helped significantly).

My understanding is that CBD oil will balance blood sugar and lower blood pressure (as it did for Bill before he went to assisted living) so if you have another condition you might find you need to adjust medications for those conditions

*****

as far as I know there have no bad side effects to  use of cbd oil

love and courage


MPSunshine
Posted: Thursday, April 11, 2019 6:33 PM
Joined: 5/21/2016
Posts: 1932


Simple message for alz+, no matter what you do, I am supporting you!!!!! Love, courage and prayers !!! (Mostly prayers.)
Vik
Posted: Thursday, April 11, 2019 11:15 PM
Joined: 2/26/2019
Posts: 172


Alz+  as you know, but ALOT of PEOPLE DONT KNOW, is that CBD oil does NOT give u a "High" feeling. That is caused by THC in marijuana. Many states hav legalized CBD oil but NOT THC. From what i hav read about both, is that CBD oil is the MEDICAL component while THC is the chemical that makes people high. I hav been doing ALOT of reading about demenria and readimg what peoole hav to say about dementia, both doctors and lay people, and most people who hav tried CBD oil say that it has helped their dementia sympoms including anxiety, insomnia, depression, and more. Im thimking of trying it once ive done more research on it....

P.S.  ive also read and heard that CBD oil helps control blood sugars, which im also researching more bcuz our dementia brains use glucose.


Smilesyourway
Posted: Friday, April 12, 2019 1:21 AM
Joined: 1/11/2019
Posts: 70


Perhaps I should give it another try.   The CBD i bought was pure CBD....no THC.   If I use any THC I become parinoid and my BP goes up.   I have cerebral vascular disease so don't need ANY high BP.   It's all very interesting.   

Smiles


Lane Simonian
Posted: Friday, April 12, 2019 6:27 PM
Joined: 12/12/2011
Posts: 4472


CBD oil has literally been your life line, alz+

I have learned more about how to treat and live with Alzheimer's from you than I have learned from reading hundreds of scientific articles.


Vik
Posted: Friday, April 12, 2019 11:35 PM
Joined: 2/26/2019
Posts: 172


Smiles, yes THC causes paranoia and delusions so stay away from that!  From what ive read from others in early onset is that people with dementua can become paranoid AND have hallucinations, so we ALL need to stay away.from that as thats just one more thing to deal with in the dementia spiral.  

I ve also read that since CBD oil is not regulated by FDC, the quality can vary widely from one CBD to another.  My suggestion would b to start at lowest.percentage of strength and then increase as needed.

I think im going to ask other people in other online support groups for dementia who hav used it to share their experiences with it....


alz+
Posted: Monday, April 15, 2019 8:58 AM
Joined: 9/12/2013
Posts: 3376


about THC and paranoia fear...

I think you are referring to incorrect dosage? people who take way too much (like I did with first edible and ate the whole thing!) and/or people who react to cannabis with anxiety and find it unpleasant? There are people who do not like the feeling of being "high" on cannabis and good point to know if even zero thc oil would also be unpleasant. I don't know enough to have an opinion.

Any dispensary will have tinctures that are being widely used for medicinal purposes, but it is up to each person to find their correct dosage and most safe thing is start with fewer drops - sublingual absorption may take 2 minutes - and then relax. When it works it's like being thirsty and drinking water, you stop thinking about being thirsty.

The first time I took cbd oil (which was heavy with thc, made for cancer patients) it tasted bad, I spent some time getting the taste out of my mouth, then found myself 20 minutes later upstairs figuring out an insurance claim dispute involving math.  It had been a burden for months, the numbers made no sense to me. I yelled to husband "I just figured out the insurance claim problem!" 

Years later it is more like I am too exhausted to get out of bed much less walk dog until I remember to take a dose and then 30 minutes later I am dressed and putting on boots and off we go. I walk a lot slower and shorter distance but it still affects me and I hope others find their own unique benefit.

Regarding danger - yes people should research it as best they can.

easiest & safest for quality and labeling of ratios is to use a dispensary. Many deliver to your home. Because the strain of low THC oil that helped children with seizures called "Charlotte's Web" became the turning point for legalizing cannabis, any dispensary would know what would be similar for neurological conditions.

as far as I  know there is no cbd oil specifically for Alzheimer's and we are often not able to report back our experiences, success or failure. 

There are videos on youtube of grandkids giving grandparents CBD oil in nursing homes and the grandfather moves himself from his wheelchair to recline on a sofa and speaks. I know this sounds fake and impossible.  A man with Parkinson's made videos of himself  relaxing after 5 minutes of vaping oil or cannabis (search Riding With Larry).  No adverse side effects except if overdosing, as far as I know.

It is affordable (about $50/month) and works for me.

also: there is a drug Marinol available by prescription. I have been exchanging info with a guy who cares for his Mom with ALZ over past 4 years and he gies her this and has videos of her relaxing and becoming cogent. http://marinol.com/  I think Bill had asked his doctor about it, not sure if anyone here has tried it.  Read the "adverse side effects" section carefully. 

( I took cbd oil and spent an hour working on this post and enjoyed it )



Rockym
Posted: Monday, April 15, 2019 9:10 AM
Joined: 1/17/2016
Posts: 864


I saw this post and thought I might have something to add.  A few years back I was in CO where marijuana is legal for rec. use.  After not having used it for 30+ years, I gave it a try.  I was hoping if it worked out, I could use it for mom who was having a lot of anxiety.  Turns out I didn't understand the flower of today and got way to high.  It took 3 hours to get back to myself, but afterwards I figured that wasn't for us.

Fast forward a few months after mom passed and I was having panic attacks.  I read up and went to the dispensary in my state where you can purchase CBD oil with .3 THC without a card.  I started with 1/2 dropper in the morning and 1/2 dropper at night.  This brand was called full spectrum and not just isolate.  Turns out the panic subsided with no ill effects.  I couldn't figure out if it was a placebo effect, but I didn't care.  I was able to handle life again.  As I felt more secure, I backed off the 1/2 dropper once a day and then not at all.

Because full spectrum CBD is rather expensive, I did some more research and decided to get my medical marijuana card (very easy in my state) and experiment a little.  Purchasing flower and other products are very inexpensive and for me, great to use on an as needed basis.  Never in my life would I have thought I would be be smoking marijuana again.  I use very high CBD with low THC.  The strain I use most often is called AC/DC.  I also use a vape pen that is 8-1, but I don't quite understand that one as much only that it works and has very little odor so it can be used in public.

I hope this post can help someone else as I am happier using the CBD compared to pharmaceuticals.  The difference is the CBD seems to leave my system much faster and I don't end up feeling that draggy feeling of pills.

 


alz+
Posted: Tuesday, April 16, 2019 8:33 AM
Joined: 9/12/2013
Posts: 3376


RockyM -

I use bud in a short glass pipe for anxiety.  The Indicas help me relax and that is a big deal. My toes curl in spasms and makes my bones hurt when walking, I take a puff before heading on a walk with dog.

There is (or was) a website for a former police officer I think called Riding With Larry - he has Parkinson's and had muscle contractures and shaking. He used a machine to vape cannabis and videotaped it and you can watch his body relax within minutes. 

https://youtu.be/zNT8Zo_sfwo

link to video of his try with cannabis

When you get to the part where physical aspects are more of a hassle this seems like a harmless and effective thing to do. The machine he used was expensive, $400 maybe? Can't recall name but much easier on lungs and I think no smell.

I also had rages that went on for days which were stopped in minutes by take 3 puffs of Purple Kush which my daughter got at dispensary. I have never allowed myself to have an extended rage since and even the lower quality bud I can get near me works, but I will never forget (?) that night I took that purple kush and all the rage melted, my body relaxed and my heart opened. None of us in room expected THAT much change that fast.

Appreciate your comments and think I could learn more about the modern way of using cannabis for dementia and also for caregiver anxiety- and SLEEP. Took half cookie last night and slept 6 hours straight.

yes, start with least amount and work from there. Guess people don't smoke a joint anymore, one puff and done.




alz+
Posted: Friday, April 19, 2019 9:10 AM
Joined: 9/12/2013
Posts: 3376


Parkinson's patient uses cbd oil   https://youtu.be/zNT8Zo_sfwo  

older woman with Alz  https://youtu.be/sb6g5-A1ljA

older woman late stages able to speak  https://youtu.be/OvL0hTfee48

woman given marijuana via a pill for anxiety  https://youtu.be/OlRnKmufRZc

 


Unforgiven
Posted: Wednesday, May 15, 2019 5:30 PM
Joined: 1/28/2013
Posts: 2497


Hello, Alz!  You have helped me.  I'm currently taking CBD oil for my back pain, and I just swallowed it.  I had not known to let it absorb sublingually, and I probably wasn't getting the full effect.  This is mail-order oil, not from a dispensary.  We don't have those yet in Wisconsin.  After years of me toughing it out so as to put off taking the strong pain meds too young and developing a tolerance, my scoliosis finally got the better of me.  I went to a spine clinic, was told there is no surgical intervention, and discovered that with the opiate crackdown there was no hope for palliative care either.  Just my luck.  I am taking whatever I can get until my backward state can legalize medical marijuana.
alz+
Posted: Wednesday, May 22, 2019 8:37 AM
Joined: 9/12/2013
Posts: 3376


Unforgiven -

what a shame an ancient herbal medicine makes some of us criminals.

I really don't know about the mail order cbd oils, I have seen Hemp Oil sold and tried some and it was not effective. Maybe have to take bigger dose, I think it is fundamentally different than cannabis oil.

Also learned new the doctors interested in treating "untreatable ptsd" and crushing depression are using guided sessions with peyote and Ayahuasca and this allows the psyche to move through the barriers and recover their true selves which sends cascade of healing throughout body and mind.

https://www.theholisticsanctuary.com/treatment/ayahuasca-retreat/

I don't have access to a doctor doing this, or therapist or whoever but when I was young I used Peyote and will never forget the feeling of belonging in the world and the love I felt.

If I were of use to the science building new ways to help broken minds and souls I would volunteer as first Alzheimer patient. I am considering making the offer.

****

CBD apparently releases different elements during sublingual absorption and in stomach. www.leafly.com has links to in depth info on how the medicine works.

Doctors have cat scans and pet scans now to watch brain change with administration of the medicine and are learning the brain will heal broken parts in ways they never knew.

I do forget to take it now, even with bottle at bedside, just realized I had not taken it today.

I also don't think it helps vascular dementia although it does lower blood pressure (If BP is high) and lowers blood sugar (if blood sugar is high). The basic function is it rebalances systems in an integrated way, not so much targeting one thing and attacking that like meds.

Pain must lower cognition much like anxiety does. Relieving pain is a good thing.

Much love to you



 
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