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New and Need assurance and or feedback.. Thank you!
CustomMade
Posted: Monday, July 8, 2019 3:10 PM
Joined: 7/8/2019
Posts: 2


 I am not sure what I am supposed to say here. I have not been dx but have a lot of concern regarding changes in the last couple of years in my cognitive abilities. I am only 62 years old and work in a fairly fasted pace and complex job/career.  Also my husband and I have experienced a lot of family stress over the last couple of years.  Not in our personal relationship, but with parents, siblings and his grown children.

Some of what I am experiencing at times as follows: 
--At times unable to recall if I did or experienced an event that morning or was it yesterday morning. 
--While driving have difficulty with some depth perception, parking is difficult and backing up I have to really concentrate.
--Some days vision is blurry or in my peripheral vision I see what I think are bugs, but when I look there isn't a bug. I've been to the eye doctor and I have perfect vision. He said blurry vision is caused from computer screens and dry eye, prescribed natural tears. 
--Difficulty in spelling words and pronunciation of difficult words, never had this before, except Latin words during my plant identification class in college  LOL. 

--Using an incorrect word while talking and sometimes difficulty in finding the correct word while talking, which at times causes my speech to be halting and slow. 

--Sometimes call something by the wrong name, example, say I am getting coffee out of the pantry, but call it milk instead, realize it and correct myself. 
--Difficulty with remembering names of people and objects and sometimes don't remember that I met somebody previously 
--Going into the wrong room for something, example thinking I need to go into the bathroom and find myself opening the pantry door instead 
--Working on my tablet, get up to get a drink of water and set my tablet down, come back and pick up my phone and then realize I’d been working on my tablet and then can't find my tablet so a sense of being disoriented 
--Not able to multitask like I used to in my job completely forget tasks I may have worked on a year ago.  Thank goodness for saving emails that help in my recall. 

--Short term memory loss on a lot of things, example: at times I will completely forget that perhaps I promised to call somebody and don't remember it until they remind me that I was to call them 

--Have difficulty recognizing the spelling of a word I will look at the word and then spell it but have to look at it several times to make sure I spelled it correctly 
--Unable to recall conversations and can't write fast enough in my notes to record the conversation before it's gone from my head 
--Difficulty in recalling a word that I need to spell I can look at the word several times same with phone numbers or addresses and still have difficulty spelling it correctly or transcribing it to paper or my phone etc.  without looking several times at the word or phone number. 

Sometimes when operating such things as the stove, timer on stove, microwave or my car, I will push the wrong button or turn the wrong knob. For example, yesterday I needed to turn off the stove timer, instead I reached for the stove temperature knob, but realized that was incorrect and had to concentrate a few seconds to recall how to turn off the timer.

at microwave will push the door open button instead of the start button and immediately realize I pushed the wrong button

In my car will sometimes turn the radio dial up, instead of the heat dial.

Have become very scared of heights especially while driving or riding in the car, do not like steep drop offs even if there is a guard rail.

Needless to say, all these are unsettling for me. In reading the 10 early signs of dementia or MCI, I fit into a couple but I’ve not gotten disoriented or lost while driving, I’ve not become antisocial nor do I think I’ve had a personality change, other than worrying about whether I am getting some kind of dementia or onset of MCI. 

I’ve not gone to the doctor, as I have a general dislike of physicians, I feel they no longer can take the time to really listen to a patient and would rather dismiss their concerns or want a person to pop another pill. 

I m hoping through this forum that someone can provide me with their experience of similar challenges so I can either work toward seeing a doctor or tell me it’s all in my head and not to worry.

Thank you in advance. 


alz+
Posted: Monday, July 8, 2019 3:26 PM
Joined: 9/12/2013
Posts: 3500


welcome - you wrote beautifully and I'm sure many of us are going to relate to the changes you wrote about.

However, it could be from something fixable, maybe even easily fixable - that is the point in the diagnostic process.

If you find a neurologist you trust and like and has experience you probably will still have to wait a few months for tests etc.  

I am no expert  so hesitate to offer any advice, but your visual changes might be assessed quickly by eye doctor. In fact it was a closing of my visual field which led me from opthamologist to neurologist. It may get you at least some answers to that faster than a getting a full neuro exam.

Other people here who are better suited will help you soon. I understand how confounding it is to forget what you get up for and find yourself in different places. Will be checking in to see how things go. Waiting can be really hard. 

love and courage


CustomMade
Posted: Monday, July 8, 2019 4:41 PM
Joined: 7/8/2019
Posts: 2


Thank you alz+ I've very much enjoyed reading some of your posts
Iris L.
Posted: Monday, July 8, 2019 11:46 PM
Joined: 12/15/2011
Posts: 16088


What does "all in your head" mean?  Of course it's in your head!  That's where your brain is!  Dysfunction in many body systems could be responsible for what you are experiencing.  You need at least two doctors: an internist to run tests and evaluate for common medical illnesses that cause memory and cognitive loss, and you need a neurologist to do further testing for the dementias.  Be sure to check your medications for memory loss side effects.  It's true that stress and anxiety can impact memory and cognition.  There are drug and non-drug treatments to ameliorate stress and anxiety.  


Not all doctors will take you seriously.  You have to be persistent and keep pushing for answers.  Read about the diagnostic process and get copies of the results of your tests.  Please keep us updated on your progress.


Iris L.


JCBeckwith
Posted: Tuesday, July 9, 2019 5:32 PM
Joined: 7/5/2019
Posts: 5


Hello, 

Please make an appointment to see a neurologist as soon as possible.   The doctor will guide you to what to do.  

I am here to help!

God Bless

JCBeckwith


Jo C.
Posted: Tuesday, July 9, 2019 11:13 PM
Joined: 12/9/2011
Posts: 9922


Hello CustomMade and a very warm welcome to you.  I can well understand that this is a stressful time with much concern.   You have found a wonderful place of support.  We are all here for one another and that now means you too!

The most important thing you can do at this point is to obtain professional medical assessment.

 It is important to know that there are many different conditions that mimic dementia that can often be treated very easily.   First, an appointment with your primary care MD and a full exam with labs with at least a CBC, Thyroid test, UA, Complete Chem Panel,  B12, and whatever else the physician feels is necessary as well as a screen of any meds you may already be taking.  If you do not find support from the primary, INSIST that you be given a complete workup to rule out any number of conditions.

 The next most important thing is an appointment with a good dementia specialist.  The gold standard for this first exam would be a good Neurologist who sees dementia patients as a routine part of his/her practice.  Neuro is best at making an accurate diagnosis for type of dementia IF dementia is present.  There are multiple different types of dementia of which Alzheimer's Disease is only one.  This is crucial because treatment for one type of dementia may be contraindicated in another.  This specialist is important because there may be a different condition other than dementia causing your symptoms.

Knowledge is power and by having this medical workup, you will gain knowledge and be empowering youself.

I also want to provide you with the contact number for the Alzheimer's Assn. Helpline at (800) 272-3900.  If you call, please ask to be transferred to a Care Consultant.  There are no fees for this service.  Consultants are highly educated Social Workers who specialize in dementia and family dynamics.

  Please do come to talk as much as you wish; we all do over a variety of topics, and it is all good.

 With warm thoughts being sent your way,

 J.


JCBeckwith
Posted: Thursday, July 11, 2019 1:50 PM
Joined: 7/5/2019
Posts: 5


Hello,

How are you today?  Through my personal experience with a love one.  I know there are good days and bad days .  I hope you are having  more good days.

I also realize from personal experiences some men do not have the patients to deal with doctors. However,  the changes that you are going through, a neurologist can definitely diagnose what is going on with you medically.

Please get some recommendations in the area where you live. And make that appointment with the neurologist.  So your condition can be addressed and stop wondering so you can move on with your life.

Take Care.  I am always here to support.

Sincerely,

JCBeckwith


JCBeckwith
Posted: Saturday, July 27, 2019 1:38 PM
Joined: 7/5/2019
Posts: 5


Hello,

I hope and pray everything is going well with you   I just said a prayer for you.  Keep looking up and let your faith take over.  Never give up.  What helped me was somehow God had a plan for me during that trying time in my life. There is a plan for you as well. At night lookup at the STARS they will give you piece and comfort.


 
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