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Younger-Onset AD or Other Dementia
New and Need assurance and or feedback.. Thank you!
I am not
sure what I am supposed to say here. I have not been dx but have a lot of
concern regarding changes in the last couple of years in my cognitive
abilities. I am only 62 years old and work in a fairly fasted pace and complex job/career.
Also my husband and I have experienced a
lot of family stress over the last couple of years. Not in our personal relationship, but with
parents, siblings and his grown children.
what I am experiencing at times as follows: --At times unable to recall if I did or experienced an
event that morning or was it yesterday morning. --While driving have difficulty with some depth perception,
parking is difficult and backing up I have to really concentrate. --Some days vision is blurry or in my peripheral vision I see
what I think are bugs, but when I look there isn't a bug. I've been to the eye
doctor and I have perfect vision. He said blurry vision is caused from computer screens
and dry eye, prescribed natural tears. --Difficulty in spelling words and pronunciation of difficult
words, never had this before, except Latin words during my plant identification class in college LOL.
an incorrect word while talking and sometimes difficulty in finding the correct
word while talking, which at times causes my speech to be halting and slow.
--Sometimes call something by the wrong name, example, say I am getting coffee out of the pantry, but call it milk instead, realize it and correct myself. --Difficulty with remembering names of people and objects and sometimes don't
remember that I met somebody previously --Going into the wrong room for something, example
thinking I need to go into the bathroom and find myself opening the pantry door
instead --Working on my tablet, get up to get a drink of water and
set my tablet down, come back and pick up my phone and then realize I’d been
working on my tablet and then can't find my tablet so a sense of being disoriented --Not able to multitask like I used to in my job completely forget tasks I may have worked on a year ago. Thank goodness for saving emails that help in my recall.
--Short term memory loss on a lot of things, example: at times I will completely forget
that perhaps I promised to call somebody and don't remember it until they
remind me that I was to call them
--Have difficulty recognizing the spelling of a word I will
look at the word and then spell it but have to look at it several times to make
sure I spelled it correctly --Unable to recall conversations and can't write fast enough
in my notes to record the conversation before it's gone from my head --Difficulty in recalling a word that I need to spell I can
look at the word several times same with phone numbers or addresses and still
have difficulty spelling it correctly or transcribing it to paper or my phone
etc. without looking several times at the word or phone number.
when operating such things as the stove, timer on stove, microwave or my car, I
will push the wrong button or turn the wrong knob. For example, yesterday I
needed to turn off the stove timer, instead I reached for the stove temperature
knob, but realized that was incorrect and had to concentrate a few seconds to recall
how to turn off the timer.
will push the door open button instead of the start button and immediately
realize I pushed the wrong button
car will sometimes turn the radio dial up, instead of the heat dial.
very scared of heights especially while driving or riding in the car, do not
like steep drop offs even if there is a guard rail.
to say, all these are unsettling for me. In reading the 10 early signs of
dementia or MCI, I fit into a couple but I’ve not gotten disoriented or lost
while driving, I’ve not become antisocial nor do I think I’ve had a personality
change, other than worrying about whether I am getting some kind of dementia or
onset of MCI.
gone to the doctor, as I have a general dislike of physicians, I feel they no
longer can take the time to really listen to a patient and would rather dismiss
their concerns or want a person to pop another pill.
hoping through this forum that someone can provide me with their experience of similar challenges
so I can either work toward seeing a doctor or tell me it’s all in my head and
not to worry.
welcome - you wrote beautifully and I'm sure many of us are going to relate to the changes you wrote about.
However, it could be from something fixable, maybe even easily fixable - that is the point in the diagnostic process.
If you find a neurologist you trust and like and has experience you probably will still have to wait a few months for tests etc.
I am no expert so hesitate to offer any advice, but your visual changes might be assessed quickly by eye doctor. In fact it was a closing of my visual field which led me from opthamologist to neurologist. It may get you at least some answers to that faster than a getting a full neuro exam.
Other people here who are better suited will help you soon. I understand how confounding it is to forget what you get up for and find yourself in different places. Will be checking in to see how things go. Waiting can be really hard.
love and courage
What does "all in your head" mean? Of course it's in your head! That's where your brain is! Dysfunction in many body systems could be responsible for what you are experiencing. You need at least two doctors: an internist to run tests and evaluate for common medical illnesses that cause memory and cognitive loss, and you need a neurologist to do further testing for the dementias. Be sure to check your medications for memory loss side effects. It's true that stress and anxiety can impact memory and cognition. There are drug and non-drug treatments to ameliorate stress and anxiety.
Not all doctors will take you seriously. You have to be persistent and keep pushing for answers. Read about the diagnostic process and get copies of the results of your tests. Please keep us updated on your progress.
Please make an appointment to see a neurologist as soon as possible. The doctor will guide you to what to do.
I am here to help!
Hello CustomMade and a very warm welcome to you. I can well understand that this is a stressful time with much concern. You have found a wonderful place of support. We are all here for one another and that now means you too!
The most important thing you can do at this point is to obtain professional medical assessment.
It is important to know that there are many different conditions that mimic dementia that can often be treated very easily. First, an appointment with your primary care MD and a full exam with labs with at least a CBC, Thyroid test, UA, Complete Chem Panel, B12, and whatever else the physician feels is necessary as well as a screen of any meds you may already be taking. If you do not find support from the primary, INSIST that you be given a complete workup to rule out any number of conditions.
The next most important thing is an appointment with a good dementia specialist. The gold standard for this first exam would be a good Neurologist who sees dementia patients as a routine part of his/her practice. Neuro is best at making an accurate diagnosis for type of dementia IF dementia is present. There are multiple different types of dementia of which Alzheimer's Disease is only one. This is crucial because treatment for one type of dementia may be contraindicated in another. This specialist is important because there may be a different condition other than dementia causing your symptoms.
Knowledge is power and by having this medical workup, you will gain knowledge and be empowering youself.
I also want to provide you with the contact number for the Alzheimer's Assn. Helpline at (800) 272-3900. If you call, please ask to be transferred to a Care Consultant. There are no fees for this service. Consultants are highly educated Social Workers who specialize in dementia and family dynamics.
Please do come to talk as much as you wish; we all do over a variety of topics, and it is all good.
With warm thoughts being sent your way,
How are you today? Through my personal experience with a love one. I know there are good days and bad days . I hope you are having more good days.
I also realize from personal experiences some men do not have the patients to deal with doctors. However, the changes that you are going through, a neurologist can definitely diagnose what is going on with you medically.
Please get some recommendations in the area where you live. And make that appointment with the neurologist. So your condition can be addressed and stop wondering so you can move on with your life.
Take Care. I am always here to support.