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hello how are you
gm gypsie
Posted: Monday, July 29, 2019 9:32 PM
Joined: 7/6/2017
Posts: 148

   Hello to everyone here on this board. First let me say how sorry I am that all of you are going through this nasty, and cruel disease.  I can't imagine what you are going through or how you  must feel.  In fact I'm here  to learn how you do feel.

   I'm the caregiver for my husband of 31 years,  I judge him to be at stage 6 on the usual scale.  He was diagnosed  to have Alzheimers , late onset no complications 4/2017.

   I firmly believe that caregivers also go through stages, so I totally get  the depression, and denial, anger, frustration, fear and confusion.  My husband is fairly cognizent  as all of you seem to be.  We don't discuss it often but I haven't  lied to him about it.  I don't know if that is right, but it feels natural  to us.  Still he doesn't express his feelings often, and sometimes he doesn't  even know  who I am. 

   So I would like to ask you guys. Is there something you wish your caregivers knew,  or that you would like us to understand .   Believe me when I tell you  most of us  are really  flying blind.

Michael Ellenbogen
Posted: Tuesday, July 30, 2019 6:30 AM
Joined: 11/30/2011
Posts: 4494

I like the idea that you are honest. I live with a nurse and she understands that side of it.  She refused to want to learn how to run and take care of the household the correct way. My way was no good and that is fine. She also did not learn and new way and her way I wont even say how bad it is. That just eats me up in side to watch her take 20 times longer to do things and all ways waste her time because she has no system or method in place and then she complains how tired she is. Its no wonder as I would be tired if I did things that way she does. I spent a lot of time early on to try to train her but none of my ways were good for her. 

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