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Spouse or Partner Caregiver Forum
Tired and blue...
It really sucks that you had to quit school. This disease doesn't ever get enough of us. I'm sorry.
Ivcatlvr, I hope you can take your own advice about taking care of yourself.
I have been thinking about you a lot over the past few weeks and wondering how it has been going with you and your DH. I am so sorry that you had to quit school. I know how much that was helping you feel like you were still part of the outside world. I totally understand everything that you said...I am tired all day; living the next several years in limbo seems daunting; substitute a different health concerns for me; and still trying to figure out plan B for my daughter. So glad that the lung biopsy was good news, but I would imagine just dealing with the RA daily is stressful all in itself, not to mention being a caregiver. You are in my prayers for that peace that passes all understanding!
I know this is an AD forum, but I also have rheumatoid arthritis and am curious about which medication caused the lung issues? I take methotrexate.
Solo caregiving was so stressful and caused so much sleep deprivation that I could only do it for about six months after DH reached the moderate stage. My RA flared up, I had suicidal thoughts, no sleep, blood pressure spikes and panic attacks. While all that was going on I was also working full time plus doing all the cooking, laundry, shopping, trips to doctors appointments, managing his angry outbursts, obsessively researching Lewy Body and other dementias... It was all too much.
I think I've recovered somewhat since he moved to memory care. I can sleep and keep up with my work now. But the financial worries are looming on the horizon. He has enough money left for about eight more months of MC.
So yes, I hear you about feeling low. Each phase of this process seems to bring its own unique miseries and joyful moments are few and far between. Good luck to you.
Lizzie, all prayers are greatly appreciated! Thank you so much!
CatBallou, yes it is methotrexate. I’m dealing now with Interstitial Lung Disease. It was a serious wake up call for me. It that’s the only thing you’re on, I can’t imagine how uncomfortable you must be. The pulmonologist had me drop it completely. Working with my rheumatologist I am currently on Enbrel self injections, Celebrex for fibromyalgia pain, plaquinil twice a day along with several OTC supplements he wants me on. I can tell the difference being off the methotrexate, but all in all I’m ok. I now have a cardiologist appointment coming up. I was doing so well on the regimen I forgot how this is a systematic disease that effects eyes, lungs, and heart too. So no more! I’m going proactive!