Joined: 11/30/2011
Posts: 4039
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I have been trying to add another version of this on the AA site
but the file is too large. So for now this will have to do. I reached out to AA
and so far not much help. This is very important for all? If AA is successful,
you will see the better one.
One of the best ways to advance research toward finding
answers about neurologic disorders is through brain donation. There is
currently an urgent need for people to donate their brains when they die, to
continue the pace of breakthroughs in neuroscience.
The Brain Donor
Project is an innovative not-for-profit that was developed to support the
National Institutes of Health (NIH) in making available high quality, well
characterized brain tissue for neurologic researchers. Our focus is on raising
awareness of the critical need for this precious tissue and on simplifying the
process of brain donation upon death.
More has been learned about the human brain in the last 20
years than in all of recorded history, but there is so much yet to discover.
More than 50 million Americans suffer from a neurologic disease or disorder –
that’s one in six of us. And the answers simply can’t come fast enough. You may not be aware that…
- Signing up to
become an organ donor does not
mean your brain is included. Separate arrangements need to be made for
brain donation.
- Donating your
body for anatomical study does not
mean your brain will be used for neurological research. Again, separate
arrangements are needed.
- People who
have not been diagnosed with a neurological disorder are encouraged to
donate as well. Control brains are just as valuable.
- Brain
donation is not disfiguring – an open casket is still an option.
- There’s no
additional cost to the family for brain donation.
Please consider making this precious gift. Visit braindonorproject.org to learn more
and to begin the process of arranging for brain donation. Thank you for
considering this invaluable gift as a way to advance science.
Sincerely,
Tish Armentrout Hevel
CEO/Founder
The Brain Donor Project
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Joined: 10/21/2016
Posts: 2739
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As of two years ago, the Brain Donor Program was no longer accepting Alzheimer's brains because they currently have all of the samples that they need. At that time, they were still accepting brains with a Lewy Body Dementia diagnosis and some other types of dementia.
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Joined: 2/2/2014
Posts: 6832
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I cant resist
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Joined: 12/15/2011
Posts: 17587
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I don't have Alzheimer's Disease, but there was a time in the earlier years when I was very offended and hurt by comments from caregivers, causing me to leave the boards. I still get offended at times, not for myself now, but for members, especially those who are newly diagnosed with dementia and are facing the greatest shock of their lives. What may seem funny or cute to a caregiver may be very hurtful to a person with dementia. I hope people can keep this in mind.
Iris
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Joined: 10/8/2020
Posts: 11
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I run a Facebook Support group for people WITH dementia (no caregivers, etc.), it is called "Memory Warriors," May I copy and paste this message and link to the support group?
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Joined: 11/30/2011
Posts: 4039
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Absolutely. Let the world know.
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