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My most important thought
Iris L.
Posted: Monday, March 21, 2022 8:45 PM
Joined: 12/15/2011
Posts: 18052


My most important thought about living with cognitive impairment is to develop a philosophy of living.  This is important for guidance in what I am doing and why, because I frequently forget.   I find that I have to reinvent the wheel, meaning, that I have to figure out what I am doing all over again.

My philosophy about living with cognitive impairment, in a nutshell, is this:  I I will not become a burden to my family or friends.  Thus, I will do whatever it takes to maintain my independence.

I was doing fairly okay for a long while but now things are worse.  Covid and the lock downs didn't help.  That's why I need my philosophy to keep me focused and to keep me from getting discouraged.  I have to focus on maintaining my independence!  That's the only thing!

Iris


OutsideLookingIn
Posted: Thursday, April 14, 2022 9:04 PM
Joined: 7/30/2018
Posts: 175


Thank you!  I really needed this.  Keep pushing yourself to maintain as much independence as possible.

Ann


Michael Ellenbogen
Posted: Friday, April 15, 2022 7:13 AM
Joined: 11/30/2011
Posts: 4323


I totally agree and I do hate the part of reinventing the wheel all the time for things you keep doing over and over. Everything is a guess anymore.

 


jfkoc
Posted: Sunday, April 17, 2022 10:12 AM
Joined: 12/4/2011
Posts: 20914


Indepencence. So easily taken for granted can become  a constant thought frought with planning and organizationm.
jrnyon
Posted: Thursday, May 19, 2022 7:14 PM
Joined: 5/19/2022
Posts: 1


Hello,  I recently moved to a new town to live with my daughter, son-in-law, and 2 young granddaughters. I had to resign from my new job as a case manager after 6 months due to cognitive issues, and have just been diagnosed with Alzheimer's disease. I am 64 years old, and not sure what to do from this point. I haven't met anyone except neighbors so I don't have social contacts yet, and not sure how to go about it now. I have difficulty with going out by myself but know I need to try....I would appreciate thoughts, ideas, etc. about what to try from here.  Thanks for input, Karen
Jo C.
Posted: Friday, May 20, 2022 2:51 PM
Joined: 12/9/2011
Posts: 13114


Hello and a warm welcome, Karen.   You are on a Forum that does not get much traffic, if you go to the "Young Onset" Forum, more Members with dementia Post there.

Also, the Alzheimer's Assn. has a 24 Hour Helpline that can be reached at (800) 272-3900.  If you call, ask to be transferred to a Care Consultant.  There are no fees for this assistance.  Consultants are highly educated Social Workers who specialize in dementia and also family dynamics.  They are very supportive, have much good information and can often help us with our problem solving and planning.

I send you best and warmest wishes, and hope to see you soon on the Young Onset Forum, you can start a new Thread to be more easily seen - just go to the box at the top that says, New Topic, put your topic in the small box and then do your writing in the larger box; that way you will be seen and get much more input.

With warmest of thoughts being sent your way,

J.


Iris L.
Posted: Friday, May 20, 2022 10:18 PM
Joined: 12/15/2011
Posts: 18052


Welcome Karen.  It is extremely difficult for a person with cognitive impairment to know what to do, because no one tells us.  We have to figure it out by ourselves.  What we figure may change over time, anyway.  It is very important that thorough medical and neurological evaluations have been done, because there are many dementia mimics.

 

As I stated above, it is important for me to have a philosophy.  This keeps me focused and keeps me going.  I decided to take advantage of whatever could help me.  In my case, this started with the medications.  I am using Exelon patch and memantine (generic for Namenda).  They help my memory and my speech.  But note, I do not have Alzheimer's Disease, but cognitive impairment not otherwise specified.

 

You may be able to live with your daughter and her family for a long time.  But a time may come to make other arrangements.  Be prepared for this.  Gather your resources.  We can talk more about this, if you want.  Post here or on the Younger Onset board, as Jo C suggested.  It can be very useful to discus your plans with a Care Consultant, they are very wise.  Please keep posting.  There is help for you.

 

 

Iris

 


oehlsena
Posted: Tuesday, August 2, 2022 5:51 PM
Joined: 5/21/2022
Posts: 37


I provide caregiving for a loved one, and what I think about is what I would do if I start to develop Alzheimers. The kind of "philosophy" I give for myself is that I've learned so much while caregiving for my loved one. I've learned invaluable lessons. Caregiving for anyone, whether for babies, older adults, or the disabled, can be such a rewarding experience although I think it is the most challenging scenario to go through. I can't even explain all that I've learned from caregiving. Some of it is just intrinsic lessons. So, I can be glad for the opportunities that having Alzheimers provides my loved ones while also grieve that I would lose so much independence. I think that this perspective also helps me to stay grounded even when dealing with my loved one acting dangerously or unacceptably.  

Peace and love!


EllisA
Posted: Sunday, August 7, 2022 8:38 AM
Joined: 10/30/2020
Posts: 19


hi everyone.  I have Alhzeimer's, MCI and am 70 so doing well.  diagnosed 3 years ago and am taking max,dose of Namenda and Aricept.  Short term memory is shot and doing things that once were simple is an extreme challenge.  As Michael said re-inventing the wheel everyday is tiresome and a bit frustrating.  I am glad this forum exists so I can read how others are doing, realizing most have similar experiences and challenges.  This journey is extremely challenging for me, something different each day.  Keep your Faith and keep looking UP.  He does hear our thoughts and prayers, even to family and friends don't understand.

Thank you for being here.  EllisA


 
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