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Being Mortal - highly recommended book is also a film. Link here
I did not know this was a film. Will be watching it tonight. Expecting to help me accept what I know is coming with my DH (and all of us at some point!). With so many decisions asked of us as caregivers, it can be tough to know what is best at times.
Just like with 'fiblets' I learned here that the right answer is the one that provides the most comfort. That was our early-mid-stage reality. Now that I have a late stage 6 LO who is knocking on the door of the final stage...7. More than just a number on the chart, it is end stage. He could go any day (as could I actually, life is like that we know) -- so I thought I should take a look at this material as a reminder of how to make this rough journey as smooth as possible at this point of his progression. Turns out it is the same answer in a way: what will make him the most comfortable?
Here is the link. I imagine parts will be hard to hear, and watch. Though I have lost extremely close LOs before, and was the primary in-home hospice caregiver for a stroke victim who I dearly loved -- this is my husband. Truly the love of my life. It is breaking my heart daily when I don't just immerse myself in trying to stay one step ahead of AD. This man is, or I should say was, my other half in every sense of the word. I could not have had a better partner to share the last 20 years with and I hate that he is almost gone most days now, anyway. Yet still here, which is different from Stage 8. All the more reason to reflect on "Being Mortal" now.
I hope some of you will also check it out and that it helps face the facts and the fear, if you do.
ButterflyWings, thanks so much for this link. I recently purchased the book and have not had the opportunity to read too much yet. I am trying to prepare myself. I don't know if I'm strong enough. It's a devastating disease and emotionally exhausting.
I will keep good thoughts for you and your husband.
My pleasure. I am happy to have found and been able to share this, and I did watch it last night after DH went to sleep. Very well done. Important conversations and the families' point of view in hindsight, was important to hear. And yes, quite interesting hearing doctors say the system isn't set up to approach this the right way. I think there should be more training on the palliative care, quality of life approach to health care. We really do not have that in our system.
Wishing everyone the very best.
Thanks for the comparison, CaringMate.
Like ButterflyWings, I'm trying to get through the book in 10-15 minute windows. Not ideal.
Thanks for sharing this! I’ve found the book and the film. Now, which do I start first? I can do either while on the exercise machines… hmmm
I’ll figure it out, just want to say I appreciate it!