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end-stage sign of pain & discomfort?
Ninalu you are describing my dw's roommate to a t. I also think it is a contracture. And you are also describing the care she is receiving.
The only thing I noticed you didn't mention is they have an air mattress that changes pressure in different places. I can hear it doing it's thing. Sorry I don't offer any advice,just my observations. None of this is easy I am sure others will chime in.
You are describing where my husband is at very well. I think we are at the same bend in the Alzheimer’s road . I just had a very similar conversation with his Hospice nurse yesterday about him bending into a c shape.
I like that you said it looks like she is doing crunches. That’s a great way to describe it. It’s something that has only been going on for a few weeks but I had a hard time articulating what I was seeing. So thank you for bringing it up because it helped me to understand it and see that others have been to this spot.
The scary thing is that when I was describing all the discomfort and the Hospice nurse punched it into her ipad -it came back with a pain score of 7. I said “ you mean out of ten?” It was a wake up call because I really didn’t think he was that uncomfortable. But nurse said that crunching thing isn’t good.
We are now going to give meds before changing and bathing. I also see more discomfort at night . So more pain meds there. DH has a pretty bad leg contracture and now contracture of hands so I think that might be it. I do massage that leg muscle to try and get it less tight. But who knows when patient can’t say where it hurts? I would also suggest an air mattress if your loved one isn’t on one. It has helped a lot to keep DH skin doing well.
I hope some of this was helpful- at least to know you are not alone on the road