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If I get dementia
Posted: Saturday, February 25, 2023 11:53 AM
Joined: 7/17/2020
Posts: 344

 My wife’s sister posted this on Face Book and I wanted to share it. 

If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things.

1.  If I get dementia, I want my friends and family to embrace my reality.

2.  If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.

3.  If I get dementia, don’t argue with me about what is true for me versus what is true for you.

4.  If I get dementia, and I am not sure who you are, do not take it personally. My timeline is confusing to me.

5.  If I get dementia, and can no longer use utensils, do not start feeding me. Instead, switch me to a finger-food diet, and see if I can still feed myself.

6.  If I get dementia, and I am sad or anxious, hold my hand and listen. Do not tell me that my feelings are unfounded.

7.  If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.

8.  If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read, and visit with friends.

9.  If I get dementia, ask me to tell you a story from my past.

10.  If I get dementia, and I become agitated, take the time to figure out what is bothering me.

11.  If I get dementia, treat me the way that you would want to be treated.

12.  If I get dementia, make sure that there are plenty of snacks for me in the house. Even now if I don’t eat I get angry, and if I have dementia, I may have trouble explaining what I need.

13.  If I get dementia, don’t talk about me as if I’m not in the room.

14.  If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live.

15.  If I get dementia, and I live in a dementia care community, please visit me often.

16.  If I get dementia, don’t act frustrated if I mix up names, events, or places. Take a deep breath. It’s not my fault.

17.  If I get dementia, make sure I always have my favorite music playing within earshot.

18.  If I get dementia, and I like to pick up items and carry them around, help me return those items to their original place.

19.  If I get dementia, don’t exclude me from parties and family gatherings.

20.  If I get dementia, know that I still like receiving hugs or handshakes.

21.  If I get dementia, remember that I am still the person you know and love.

Amy Joy
Posted: Sunday, March 12, 2023 6:00 PM
Joined: 9/5/2022
Posts: 69

 Hi arrowhead!

How’s your day going?

I was in my late 40s when I first started getting sign off dementia.

I didn’t want to believe it and I was denied.

I didn’t want everyone to know.

Then I saw an old classmate that recognized me from school.

I said sorry I don’t remember you and then told her I had dementia.

I try to stay positive when I’m struggling with having memory better, 

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