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Doctor Day...(1)
Joellen
Posted: Wednesday, September 13, 2017 3:25 PM
Joined: 5/4/2017
Posts: 45


My husband had his doctor visit.  He has been taken off his medicine because it seemed to make symptoms worse.  So I guess we are going to let nature take its course.  I feel like this is the calm before the storm.  Doctor did not want to prescribe medicine for anxiety or sleep problems because of side effects.  I feel really defeated right now, knowing there isn't anything else that can be done.
JJAz
Posted: Wednesday, September 13, 2017 4:54 PM
Joined: 10/21/2016
Posts: 554


Joellen,

Sorry that you've had a difficult visit at the doc.  I hope it doesn't get worse.  Maybe this is the time to start looking for a 2nd opinion doc?

Blessings,

Jamie


Rosi's Mom
Posted: Wednesday, September 13, 2017 5:02 PM
Joined: 11/13/2015
Posts: 151


Joellen, Was this doctor your pcp, neurologist, or a specialist at a university hospital? It makes a diference. If you get a second opinion, you might want to try a specialist.

Thinking of you,

Peggy


Mimi S.
Posted: Wednesday, September 13, 2017 6:18 PM
Joined: 11/29/2011
Posts: 5961


A second what Rosi's Mom wrote.  Also, if you go to a good center they will reevaluate the process of diagnosis.
elruth
Posted: Thursday, September 14, 2017 1:19 AM
Joined: 12/17/2016
Posts: 40


Joellen, So sorry that no meds will be prescribed. I too would suggest getting a 2nd opinion. Every case is different but the anti- depressant RX'd really helped my husband. His internist Rx'd that and his neurologist RX'd Namenda . ( med for Alzheimer's )

 


Joellen
Posted: Thursday, September 14, 2017 7:37 AM
Joined: 5/4/2017
Posts: 45


Thank you everyone,,, he is a neurologist.  He already tried Namenda, Aricept, and namzeric .   He almost was worse on the medicine.  Namenda worked for awhile.  Anything with Aricept seemed to give him side effects.  I think it is a good idea to find another doctor. Doctor had him in late stage.  I question that, because he is functional in all areas with some confusion and comprehension problems along with some forgetfulness.  Dr. said he had Alzheimer.  I meant alcoholic dementia since he drank all these years.  Dr. said it could be if the symptoms stay the same and don't get worse.   I just don't know... Thanks again for the support.

 


Mimi S.
Posted: Thursday, September 14, 2017 9:30 AM
Joined: 11/29/2011
Posts: 5961


Is the neurologist a specialist is treating dementia? If he is not, a second opinion would bed valuable. If he is not, a second opinion would still be valuable. If he as far along as the doc thinks than there is really no point in meds such as aricept. These are most useful in the first half of the disease.
Mimi S.
Posted: Thursday, September 14, 2017 9:31 AM
Joined: 11/29/2011
Posts: 5961


Is the neurologist a specialist is treating dementia? If he is not, a second opinion would bed valuable. If he is not, a second opinion would still be valuable. If he as far along as the doc thinks than there is really no point in meds such as aricept. These are most useful in the first half of the disease.
Mimi S.
Posted: Thursday, September 14, 2017 9:32 AM
Joined: 11/29/2011
Posts: 5961


Is the neurologist a specialist is treating dementia? If he is not, a second opinion would bed valuable. If he is not, a second opinion would still be valuable. If he as far along as the doc thinks than there is really no point in meds such as aricept. These are most useful in the first half of the disease.
rosepoint
Posted: Thursday, September 14, 2017 10:50 AM
Joined: 1/22/2014
Posts: 548


My MIL has both Alz and Korsakoff's (alcoholic dementia) so mixed dementia could be a possibility for your DH.  My MIL first primary symptoms were losing complete control of her drinking (she was a functional alcoholic before) and a LOT of confabulation which are typical with Korsakoff's.  Now her symptoms are more alz related like incontinence, memory issues, etc. 

  I would add my voice to everyone else that you get a second opinion.  My MIL's has high anxiety, always has, and we have both her PCP and a geriatric psychiatrist managing her meds.  Her neuro was useless for that.  The PCP has her on thiamine due to her alcoholism and her geri psych has her on Trazadone for anxiety.   One other thing I wanted to mention is that Ativan caused my MIL to go crazy with anxiety and behavioral issues not sure if it's the Korsakoff's that caused that reaction but she has Ativan listed as an allergy now to make sure it's never prescribed for her again.


Joellen
Posted: Thursday, September 21, 2017 6:55 AM
Joined: 5/4/2017
Posts: 45


He is off medicine and doing really so much better.  I have him taking magnesium supplement, L-theanine, and b complex with folic and c.   I really wonder if he doesn't have more the alcoholic dementia the Alzheimer.  He drank most of his life.  He has stopped about a year ago. He is self sufficient with some memory problems and comprehension problems.  His spirits are up too
jfkoc
Posted: Thursday, September 21, 2017 12:49 PM
Joined: 12/4/2011
Posts: 13261


We switched Drs (neurologists) 3 times. I went to a support group and there was a lot of discussion about how little neurologists actually knew.

It is hard to find someone knowledgeable.

Would you share exactly how your husband was diagnosed?


 
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