Community Resource Finder


Learn what’s worked for others and share what’s worked for you.

Ask a question.
Search for answers.
Post your solution.
Rate a successful solution.

  • User Armondo asked: 7/22/2016 9:38:57 PM | Symptoms/Behaviors

    using tissue

    Submit Cancel
  • User tracl8am asked: 7/22/2016 2:10:24 AM | Working with a Health Care Team

    Im taking my mother to her family doctor Monday for her first follow up appointment after a diagnosis of Vascular Dementia. The big university hospital that ran all kinds of tests for 3 days diagnosed her, handed her new prescriptions for nicotine patches and Lisinopril, scheduled appointments for PT/OT and the follow up one Monday with her GP and sent her home. Wait...what? I guess I need to know what to ask him...where to begin, what to expect. She should be refered to a Neuro, right? What about Alz. drugs? Ive been working with dementia residents for years and years but never had to relate to it on such a personal level before..nor ever expected, wanted to.

    Submit Cancel
    • User Mimi S. replied: 7/22/2016 8:25:02 AM

      Welcome to our world tracl. Do research everything you can about Vascular Dementia. Getting her off the cigarettes is important. Sometimes meds such as Aricept are counter-indicated for non-Alzheimer''s dementias. Research this before you go to your GP but also ask. PT/OT is very important. I don''t know about referral to a Neuro. How far are you from where Mom was diagnosed? With VD I would think monitoring the heart and getting all those numbers where they should be would be super important. Perhaps a yearly visit to a neuro??? If you go above to caregivers under message boards, you can ask others who are caring for someone with that diagnosis. Mom is in early stages? Getting her involved in Best Practices is the best thing to do right now:There are other things you can do to help slow down the course of this disease, including: (1) Sticking as closely as you can to a Mediterranean diet (with wine and nuts), which has been shown to help prevent/delay the onset of AD, and also slow its progression. See: Basically, it involves: - High intake of vegetables, legumes, fruits, and cereals - High intake of unsaturated fatty acids (mostly in the form of olive oil) - Low intake of saturated fatty acids - Moderately high intake of fish - Low-to-moderate intake of dairy products (mostly cheese or yogurt) - Low intake of meat and poultry - A regular but moderate amount of ethanol, primarily in the form of wine and generally during meal. To that, I would add eating a quarter cup of nuts every day -- quite a few studies have found they''re very good for you. Also, olive oil is very good for salad dressings etc, but not so much so for cooking especially at higher temps. Use canola oil for that, or a mix of the two. (I''ve seen plenty of products that contain olive and canola oils.) Avoid hydrogenated fats and trans fats like the plague. (I also take Omega 3 and antioxidants.) (2) Lots of physical exercise ... there is quite a bit of evidence it can help prevent/delay onset. (As strenuous as possible. Recent research shows such build new brain cells!) (3) Lots of exercise for the brain -- activities that involve learning something new. I''ve seen some reports that learning new things coupled with using a computer can be particularly helpful. (A variety is best. Figure out what stretches your mind but is not so hard you are frustrated.) (4) Socialization, doing things with friends and family. (Most of us do not do well in large and/or noisy groups.) (5) Plenty of rest. (6) NO SMOKING!!! and avoid air pollution as much as possible. (7) Do whatever you can do to minimize stress. (And take meds as directed.) Do tell us what''s going on using the Caregivers section of the Message Boards.

  • User beachblonde91 asked: 7/21/2016 9:36:50 PM | Daily Care

    My LO has become a very picky eater with intense sugar cravings. I have caught her drinking maple syrup, eating sugar packets, but will not eat a meal without some major cajoling. We recently had an episode where she all but stopped eating entirely, but that proved temporary. She recently had a heart attack b/c of her diabetes and I was told to put her on a diet. I make her meals; but give her agency over choosing snacks (portioned out baggies of things she likes). Lately however, she has stopped wanting meals and those snacks and will only eat bananas. Unfortunately I am alone with her and sometimes have to leave her by herself during the day for 3 hours to go to work. When I am gone she tears up the house looking for treats. She eats about 4 pounds of bananas a day, and I am worried that it cannot be good for her. If I do not provide her with a massive quantity of bananas, however, she will go ballistic to the point where she needs a tranquilizer.

    Submit Cancel
    • User Mimi S. replied: 7/22/2016 8:29:00 AM

      Any hope of Assisted living Placement? Sounds like she can no longer be left alone. From your library ASAP ask for any book written by Naomi Feil with the word Validation in the title. Do use her method with your mom. You''ll have to limit the amount of bananas available. Ditto with other things you don''t want her to eat. Are you in consult with a dietician knowledgeable about dementia? Perhaps our help line: 1-800-272-3900 can give you a referral in your area. Do browse Message Boards.

      Avg 5 (1 total ratings)
  • User Toothykim asked: 7/21/2016 7:56:32 PM | Safety Issues

    Does anyone have any recommendations for a gps watch for my dad. Definitely needs water resistant. I would rather not pay monthly fees if possible. Thanks

    Submit Cancel
  • User HollyToomey asked: 7/21/2016 3:41:59 PM | Care Options/Transitions

    Does anyone know of good resources for home support for cleaning, laundry, meals etc in the Westlake Village CA area?

    Submit Cancel
    • User Mimi S. replied: 7/21/2016 5:52:36 PM

      Do call your Aging Office or local agencies such as Home Alone ? or Caregivers of America

  • User Dickvoehl asked: 7/21/2016 11:48:44 AM | Daily Care

    Where can I find hourly care giver to be a companion 5 hours a day

    Submit Cancel
    • User Mimi S. replied: 7/21/2016 5:53:01 PM

      See above

  • User NanceO asked: 7/20/2016 9:35:28 PM | Care Options/Transitions

    How do you discuss POA with your LO without them becoming upset, defensive, etc?

    Submit Cancel
    • User Mimi S. replied: 7/21/2016 7:36:05 AM

      Use the term we. Actually every adult should have a POA because one ever knows. Suggest you both go to a certified Elder Law Attorney and get them signed.

  • User Jade8 asked: 7/20/2016 8:00:03 PM | Family/Relationships

    Any thoughts on how to deal with a dad who thinks I (his daughter) is a love interest and wants to "marry" me. It is freaking me out.

    Submit Cancel
    • User Mimi S. replied: 7/21/2016 7:41:04 AM

      Of course it is. The 36 Hour Day has a section on this. It''s the disease. Sometimes daughters look a lot like their mom. Since a person with dementia''s concept of real times retreats, he may be confusing you with his wife in their relationship at your age. Gently validate what he say and redirect. I do vaguely remember that Naomi Feil in her book on Validation also deals with this subject. Do browse the Message Boards.

  • User sket asked: 7/20/2016 1:52:15 PM | Daily Care

    We have had a rapid onset with my mother and dealing with a host of issues all at once. Once concerning issue is her diet, she is not eating well, choosing junk food over healthy food..
    She is with my father far away and he has never been the meal prep person. I make suggestions like buy cut up fruit, do not buy junk food.
    Is my mother possibly not recognizing familiar food? Any suggestions to help with this.

    Submit Cancel
    • User Mimi S. replied: 7/21/2016 7:44:20 AM

      I''m wondering who is in charge at home? Is it time for some caregiving, especially at meal times? Your mom has firm ideas of what she wants to eat and it''s easier for dad to go along and keep the peace.

    • User beachblonde91 replied: 7/20/2016 9:26:49 PM

      My grandmother stopped eating about two years ago and will starve herself until she is given candy or chocolate cake. Sometimes medication can make food taste funny. She may also be depressed, and that never helps. Her nurse is big into holistic living and started giving her smoothies to replace some of the nutrients she was losing. Smoothies are awesome and a great way to get rid of extra fruits and veggies that are going to be otherwise wasted. The nurse and I made about 7 smoothies in a batch. I like to use avocado as a base and chuck in some different powders and miralax then use peaches and fruit V8 to mask the healthy stuff. The smoothies recharged her appetite and got her back on track. They also can be pawned off as junk food. I like to pretend that my grandma is being mischievous when she goes to get another one (she is diabetic and they are sugary). My grandma has always loved to be puckish so I like to exploit it. I also set the refrigerator up in a way that is the same every day and features brightly colored labels. That way she knows what is in there. I also keep the dry goods on the counter to remind her that they exist and are edible.

  • User T.Rodriguesw asked: 7/19/2016 10:31:32 AM | Symptoms/Behaviors

    Sorry I am new and an looking for an alternative to Xanax to help my Mother whom is having difficulty adjusting to her Foster Care Home. My Bother and Myself bother find that she is to sleepy and out of it using this drug. She has always been very sensitive to medication and she is on the lowest dose possible. We want her to be both calm and also not completely out of it. Open to any suggestions. We are now 4 years into this disease.

    Submit Cancel
    • User beachblonde91 replied: 7/20/2016 8:44:33 PM

      Hello T.Rodriguesw, We have been in the same boat, finding the right medication combination. If she is not handling Xanax, there are other things like Clonazepam that I personally have found to be a godsend for my grandma.We are six years in, and I can appreciate what you are going through. My grandmother has problems with severe panic attacks, anxiety, and sundowning. Subsequently, her doctor suggested giving her 5mg BuSpar three times day, 10mg Celexa once a day, and .5mg Clonazepam PRN. We have been doing it for a year and she has had fewer bad incidents. I also know her triggers pretty well and can usually give her a Clonpin about 30 minutes before an attack. This has become a great system, a real 1-2-punch. I also have found that having "quiet time" can sometimes avert a panic attack. I am not sure if Xanax has it, but one thing that I always try to tell people about is to be careful about blackbox warnings on these types of drugs. You may already know about them, but there is sometimes a chance of spontaneous death with certain mood stabilizing drugs in the elderly. I always like to warn people just in case. Hope that helps!

    • User Father watcher replied: 7/20/2016 7:15:24 PM

      Is your mother on an antidepressant? My father takes a low dose Zoloft. It helps with anxiety and doesn''t sedate home.

    • User Father watcher replied: 7/20/2016 7:15:03 PM

      Is your mother on an antidepressant? My father takes a low dose Zoloft. It helps with anxiety and doesn''t sedate home.

    • User fight4dad replied: 7/20/2016 12:38:30 AM

      We have found some success in using hemp oil and edible cannibus with my father. It is not a perfect solution but by monitoring the milligrams of THC in the dose administered and keeping him on schedule his disposition is calmer and more predictable. Although this could be tough to administer in a facility.

    • User Mimi S. replied: 7/19/2016 6:50:57 PM

      I don''t have the answer. Do discuss it with her doctor. Also repost this question on the caregivers section of the Message Boards.

Previous 1 2 3 4 5  ... Next 
× Close Menu